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THE FLORIDA CLEFT AND CRANIOFACIAL NETWORK (FCCN)
FCCN is a unique cooperative between the University of Florida, Children's Medical Services of Florida Department of Health, Regional and Local Family Networks and Florida Health Care Providers.
Mission: To assist professionals and the families who care for children born with craniofacial differences; to educate and empower them with knowledge and understanding of the needs of children with cleft lip, cleft palate and other craniofacial conditions.
With the financial help of the Florida legislature FCCN:
- Works cooperatively with professionals and non-professionals throughout the state to provide coordinated family centered care statewide.
- In five regions throughout Florida develops family networks, with the parent of a child with a craniofacial difference or a qualified professional serving as coordinator in each region. The five regions include West Florida, North Central, Jacksonville Area, Tampa Bay Area, and South Florida.
- Works with the CMS area office(s) in each region regarding assistance to parents of newborns with a craniofacial difference;
- Assists in developing effective feeding strategies, obtaining early counseling and specialized feeding supplies (e.g. as bottles and nipples);
- Improves communication with parents of newborn infants with hospitals, physicians, nurses and other professionals.
- Arranges for training sessions for professionals and parents.
- Develops a registry of individuals and agencies served through the network.
- Supports family weekend camps in different regions of Florida:
- UF Craniofacial Camp close to Gainesville, Camp Boggy Creek in Central Florida, and a camp in Ft. Lauderdale, on the campus of Nova Southeastern University.
If you would like more information about the activities of FCCN, or would like to contact the coordinator in your region, or if you need help with educational materials or feeding supplies, please contact Ms. Lyuba Yenatska at 352-273-9309, toll-free 800-726-2029; or you can email her at craniofacial@dental.ufl.edu
UNIVERSITY OF FLORIDA CRANIOFACIAL CAMP
Every summer the Center holds a four-day camp for children with craniofacial differences and their families who are followed in local clinics. The camp is designed to help these children develop coping skills and improve self esteem and self confidence. The camp, which is staffed by our team members and UF graduate students, provides an opportunity for 15-25 families to spend time with these specialists and other families with similar problems in an informal setting where they can ask questions, express concerns and develop friendships. Camp Montgomery, the site of the annual camp, is located on beautiful Lake Crystal, about 40 miles east of Gainesville and the UF campus. This camp features individual cabins for families and staff, a large dining/conference hall, a covered basketball court, and extensive lake frontage for boating, fishing and swimming.
For more information on this camp contact Ms. Ginny Dixon-Wood, camp director, Dr. Steve Boggs, pediatric psychologist, or Dr. Bill Williams, Center Director.
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